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  • About NeuroVita
  • What We Do
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Defy MS: How Occupational Therapy Can Empower You


Author: Rickey Hickman (Snr Occupational Therapist)

Introduction

Living with Multiple Sclerosis (MS) isn't easy, there is no getting past that but its important to stay positive and take control of what you can. One choice you have is to work with a skilled occuaptional therapist. Occupational therapist are uniquely trained to provide advice and therapy to limit the impact your MS has on your everyday life. Here we will cover what a Multiple Sclerosis is, the typical symptoms, the OT role in managing MS and common ways OTs can help.


If you'd like to work with one of our Gold Coast OTs call now!

Understanding Multiple Sclerosis and Its Impact

What is Multiple Sclerosis (MS)?

Multiple Sclerosis (MS) is a chronic condition that affects the central nervous system, which includes the brain and spinal cord. In MS, the immune system mistakenly attacks the protective sheath (myelin) around nerve fibres, causing inflammation and damage. This disrupts the normal flow of electrical signals along the nerves, leading to a variety of symptoms that can differ widely from person to person.


Here are the main types of MS:

  1. Relapsing-Remitting MS (RRMS): This is the most common type, featuring episodes of new or worsening symptoms (relapses) followed by periods of recovery (remissions). During remission, symptoms may improve or disappear entirely.
  2. Secondary Progressive MS (SPMS): Often a progression from RRMS, SPMS involves a gradual worsening of symptoms over time, with fewer or no clear periods of remission.
  3. Primary Progressive MS (PPMS): Characterised by a steady decline in function without distinct relapses or remissisons.
  4. Progressive-Relapsing MS (PRMS): This type features a continuous progression of symptoms from the beginning, with occasional relapses adding to the overall decline.


Understanding the type of Multiple Sclerosis can help tailor treatment and management strategies to improve quality of life and occupational therapy treatment, make sure your therapist know's what type you have.

Multiple Sclerosis Symptoms

Multiple Sclerosis (MS) can impact all parts of the body from physical and cognitive abiltiies, vision and hearing to emotional and psychological functioning. 


Common physical challenges in MS include:

  • Fatigue: A persistent and often debilitating feeling of extreme tiredness or exhaustion. This is one of the most common symptoms in MS and can really make everyday life difficult.
  • Weakness: Reduced muscle strength due to nerve fibre being damage which can impact all activites.
  • Ataxia: Reduced coordination of the upper and lower limbs that can impact walking and everyday function tasks like eating and dressing.
  • Spasticity: Abnormal increases in muscle tone which can cause stiffness and/or make movements difficult or painful.


Common Cognitive challenges in MS inlcude:

  • Attention/Concertation: Difficulites in maintaining attention which can making performing everyday tasks difficult.
  • Memory: Becoming forgetful is another common symptom in MS making it difficult to manage everday tasks like appointments.
  • Brain Fog: The general cognitive foggyeness that makes thinking and planning difficult and effortful.


Common sensory challenges in MS include:

  • Vision and hearing changes: Blurred , double or impaired vision are symptoms that can occur in MS as well as different levels of hearing loss which impact all daily living activites.
  • Numbness or tingling: This can occur anywhere in the body but most commonly imapcts the hands and feet, impacting mobility and fine motor skills. 


Other common challenges in MS include:

  • Incontinence: Loss of control over bladder or bowel functions or loss of sensation of the need to complete bladder or bowel motions can impact continence. 
  • Thermoregulation challenges: Sensitivity to heat is a very common symptoms and this can result in a worsening of MS symptoms that resoles when ones internal body temperature is properly managed.
  • Mood changes: low mood and mood swings can often be common in MS. 



Occupational Therapy for Multiple Sclerosis

What is Occupational Therapy?

Occupational therapy (OT) is all about helping people lead full, meaningful lives by addressing challenges in performing every day activities. Occupational Therapists implement a combination of person, environment and task based approaches aiding individuals to overcome barriers to their independence and enhance their quality of life.

Occupational Therapy Role in Multiple Sclerosis?

The primary goal of an occupational therapist is to minimise the impact a persons MS symptoms has on their everyday life. Your OT will perform specific assessments to understand your strengths and challenges, discuss your goals and aspirations and collaborate with you to help you do the things that matter most to you.


Once your OT has this information they use their unique skillset to help you improve you skills and abilities, change the way activities are performed or modfy the envionrment or introduce specialised equipment to make sure you can have the freedom to confidently manage you everyday tasks.

Occupational Therapy Strategies

  • Task Adaption: OTs take a close look at the tasks you find tricky and figure out what specific parts are stopping you from completing the task. Then they adjust the task to make sure you can complete it with safety an independence. For example, during meal preparation you might find finely dicing onions is impossible. The OT might suggest getting a cutting aid, buying pre diced onions or a special technique to manage cutting the onions on your own.


  • Physical Rehabilitation: OTs create personalised exercises to help rebuild your strength, coordination, and range of motion. This not only helps you get back to doing the things you love but also makes daily activities feel more manageable. 


  • Assistive Technology: OTs might suggest some equipment or technology to help you out. This could be a four-wheeled walker or wheelchair to help you get around, or a button hook and dressing stick to make dressing easier. These aids are all about boosting your independence and autonomy.


  • Home Modification: To make your home safer and more accessible, OTs might recommend minor or complex home modifications, like adding grabrails or installing a ramp. These tweaks help you move around more confidently and tackle everyday tasks with ease. 


  • Cognitive Rehabilitation: OTs use specific exercises to help improve your memory and thinking skills. The aim is to make everyday challenges less of a hassle and help you manage cognitive difficulties more effectively. 

Evidence-Based Therapy for Multiple Sclerosis

Virtual reality (VR) therapy is a cutting-edge method for recovery after brain injury that immerses patients in digital worlds to help them get better. By using interactive VR simulations, therapists can design customised exercises that focus on improving the specific motor skills and cognitive functions affected by a brain injury. Massetti et al (2016) completed a systematic review finding that VR is effective for improving motor and cognitive skills in people with a Multiple Sclerosis.


Task Oriented Training (TOT) in Multiple Sclerosis is an effective and evidence based strategy, as highlighted by Hassanin et al in his 2023 Systematic review and meta-analysis. This strategy works by practicing a range of activities that have similar functional requirements. For example, working on sit to stand transfers, but getting in and out of your car and bed and on and off the toilet and your lounge chair as a way to practice and improve this skill. The great thing about this strategy is that because you are completing a range of tasks, rather than just prating the one skill it doesn't become boring.


Success Stories

Working with clients at all stages of Multiple Sclerosis (MS)I have shared the joy of many success stories, here are some examples I hope will provide motivation to stay consistent in your therapy journey.


When initially diagnosed with MS Mrs. L was relieved and overwhelmed, she had answers now but feared what the future held. Collaborating together she identified that managing her personal cares (dressing, showering etc.) were so fatiguing it was stopping her from engaging in more meaningful activites, like gardening or spending time with her children. Through a personalised occupational therapy plan focussed on increasing her physical abilities and strategies and equipment to reduce the physical requirements of her self-cares she was able to increase her participation in meaningful activities. This provided a major boost in her quality of life and overall mood. 


Mr M had been living with MS for many year before working with our OTs, he had given into the idea that there was nothing he could do. But with his courage and trust in the team he obtained a mobility device, learnt how to use it and massively improved his wellbeing. From spending all his time watching TV to enjoying the Zoo with his family, this was a huge WIN!


Occupational therapy can be a powerful service in your managing MS, but It's important to remember that each person's journey is unique, and outcomes will vary. While we cannot guarantee specific results, our focus is on working together to achieve the best possible progress for each person.

Conclusion

Living with Multiple Sclerosis can be challenging, but Occupational Therapy provides valuable support in achieving greater independence and improving your quality of life. Through tailored approaches and the guidance of your OT, you can make meaningful progress in managing your condition. While advancements may come gradually, each improvement is a significant achievement. Embrace the resources available to you, stay dedicated to your therapy, and continue striving towards your goals. Every step forward counts on your journey to better well-being. 

Find Out How We Can Help You

References

  • Massetti T, Trevizan IL, Arab C, Favero FM, Ribeiro-Papa DC, de Mello Monteiro CB. Virtual reality in multiple sclerosis - A systematic review. Mult Scler Relat Disord. 2016 Jul;8:107-12. https://doi:10.1016/j.msard.2016.05.014.
  • Ahmed Hassanin M, Aly MG, Atef H, Marques-Sule E, Ahmed GM. Task-oriented training for upper limb functions in patients with multiple sclerosis: Systematic review and meta-analysis. Mult Scler Relat Disord. 2023 May;73:104625. https://doi:10.1016/j.msard.2023.104625.

Additional Resources

  • Check out the great resources and supports at MS Queensland -https://www.msqld.org.au/Support
  • Want to be informed about your condition? Check out the FREE course Understanding MS - https://www.msaustralia.org.au/news/understanding-ms-the-free-online-course-making-a-positive-impact/Educational
  • Have a specific question? Check out our Instagram page where every Friday we answer your questions or call and talk to one of our helpful team members.

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